Genomic Equity & Research Ethics: A Panel for Students and Trainees

by Department of Bioethics

Lecture/Speaker Audience: Graduate/Professional ...

Mon, Sep 19, 2022

2:30 PM – 4 PM EDT (GMT-4)

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BRB 105

2109 Adelbert Road, Cleveland, OH 44106, United States

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The panel discussion on "Genomic Equity and Research Ethics" is the first event for the Bioethics Center for Community Health and Genomic Equity (CHANGE).

The panel is especially aimed at students and trainees. The speakers are:

Patricia A. Marshall, Dept. of Bioethics, CWRU

Eric Juengst, Dept. of Social Medicine and the Dept. of Genetics at the University of North Carolina, Chapel Hill

Shlomit Zuckerman, Center for Bioethics and Law at Tel Aviv University

Where

BRB 105

2109 Adelbert Road, Cleveland, OH 44106, United States

Speakers

Patricia Marshall's profile photo

Patricia Marshall

Department of Bioethics, CWRU



Dr. Marshall’s training is in medical anthropology. She has worked in the field of bioethics for more than thirty years. Her research and scholarly publications have focused on national and international research ethics, informed consent, and cultural diversity and bioethics practices. In recent years her work has focused on ethical and social issues associated with genomics.



Dr. Marshall was Co-Director of the Center for Genetic Research Ethics and Law in the Department of Bioethics at the School of Medicine from 2010-2013, and Director from 2013-2021.  



Dr. Marshall has been awarded numerous grants from the National Institutes of Health (NIH) for her research. In the area of genomics, she was funded to conduct a randomized trial testing the effectiveness of an educational video on comprehension of informed consent to genetic research in the United States and Nigeria. She was awarded an NIH Challenge Grant to conduct community-based research on knowledge and beliefs about genetic research and its relevance for reducing health inequalities. Dr. Marshall worked with Dr. Charles Rotimi’s team at African sites for the HapMap Project, an international consortium to develop a haplotype map for the human genome.



Dr. Marshall is a past member of the executive boards of the American Society for Bioethics and Humanities, the Society for Medical Anthropology, and the Society for Bioethics Consultation.



Dr. Marshall served on the Advisory Board for the Fogarty International Center at the National Institutes of Health. She served as a consultant to the President; National Bioethics Advisory Commission on their project examining ethical issues in international health research. She was a consultant to the World Health Organization; Council for International Organization of Medical Societies on their revision of ethical guidelines for international research. Dr. Marshall was appointed to the National Academy of Sciences study panel on IRBs, Surveys and Social Science Research. Dr. Marshall was appointed to the National Secretary’s Advisory Committee on Human Research Protections (SACHRP) for the NIH Office Human Research Protections.



She is a founding member of H3Africa (Human Heredity and Health in Africa), an initiative to develop capacity for genomics research on the continent of Africa.








Eric Juengst's profile photo

Eric Juengst

Professor

Department of Social Medicine and the Department of Genetics at the University of North Carolina, Chapel Hill

Dr. Juengst’s research interests and publications have focused on the conceptual and ethical issues raised by new advances in human genetics and biotechnology. Since 1997 he has been the principal investigator of a series of N.I.H. funded research projects examining the ethical and social justice issues that will be raised by the availability of genetic and genomic technologies. His current R01 project examines the ethical and policy challenges involved in translating human genome editing research into clinical practice.



Dr. Juengst has served on the National Advisory Council for Human Genome Research at NIH, the National Bioethics Committee of the March of Dimes, the Ethics Committee of the American Society for Human Gene Therapy, the DNA Advisory Board for the Federal Bureau of Investigation, the Recombinant DNA Advisory Board of NIH, and the Committee on Human Genetic Diversity for the National Academy of Sciences. In 2005 he was awarded the “Golden Eurydice Prize” for leadership in advancing the study of ethical issues in science by the International Forum on Biophilosophy, Leuven, Belgium. He currently serves on the Diversity, Equity, and Inclusion Committee for the UNC Department of Social Medicine.



He received his B.S. in Biology from the University of the South in 1978, and his Ph.D. in Philosophy from Georgetown University in 1985. He has taught medical ethics and the philosophy of science on the faculties of the medical schools of the University of California, San Francisco Penn State University, and Case Western Reserve University . From 1990 to 1994, he served as the first Chief of the Ethical, Legal and Social Implications Branch of the National Center for Human Genome Research at the U.S. National Institutes of Health, and from 2005-2010 he directed the Center for Genetic Research Ethics and Law at CWRU, an NIH supported “Center of Excellence in Ethical, Legal and Social Implications Research”. From 2010-2020 he served as the Director of the UNC Center for Bioethics, and continues to be a Core Faculty member of that Center.





Shlomit Zuckerman's profile photo

Shlomit Zuckerman

Dr. Zuckerman received a BSc. in Biology (Cum Laude) and LL. B in Law from Hebrew U. in Jerusalem (1993), MA and a PhD in Empirical Bioethics from Case Western Reserve University in Cleveland Ohio, US (2008).  Since 2009 she has been teaching at Hebrew U. and Tel Aviv U. Faculties of Medicine, and at Haifa U. School of Law. Her courses include Public Health Ethics, Ethics and law in Disaster Management, Law and Policy in Health Care and Patient Safety for graduate students.  Since 2021 she has also been mentoring Israeli and international graduate students in empirical research workshops and final projects.



Since 2004 she has been attending and presenting her research projects at International and National conferences. In 2012-2016 she served as a substitute management committee member at a Disaster Bioethics COST project of the EU and served as member at its Research Ethics Committee.



Since 2015 she has conducted numerous ethics forums in collaboration with hospital management teams and the Israeli Ministry of Health. She provides ethics and risk management counseling to Israeli Ministry of Health Committees including a Task Team of the Ministry of Health "Ventilation Triage for Covid-19" patients and a Ministry of Health Control and Quality Committee for the Management of Sperm Banks in Israel.



In 2018 she has been appointed Deputy Academic Director of the new Center for Bioethics and Law at TAU Faculty of Medicine under which she organizes international and national workshops and webinars on emergency use of medications for Covid (2020) and Hospital Ethics Committees Forum (2022) .



She has published her work in peer reviewed Journals including Journal of Medical Ethics, International Journal of Neonatal Screening  and co-authored book chapters on the topics of Military Medical Ethics and Humanitarian Ethics and Action. Her research interests include ethics and law in disaster and emergency management, hospital ethics committees and counselling, public health ethics and policymaking, empirical research ethics, implementation of ethics curriculum in medical education.



 


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Co-hosted with: Bioethics Center for Community Health and Genomic Equity

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